Hydrocephalus and how it affects children as they grow.

Hydrocephalus is a chronic neurological condition characterized by an abnormal accumulation of cerebral spinal fluid in the brain, leading to increased pressure. Hydrocephalus can be congenital (present at birth) or acquired at any stage of life. This invisible disability occurs in about 2 of every 1,000 live births and affects an estimated one million Americans. There is no known way to prevent or cure hydrocephalus. The most effect treatment is surgical insertion of a shunt, a flexible tube that diverts the flow of fluid from the head to another region of the body where it can be absorbed.

Teachers and school administrators may not know that a student has hydrocephalus until a shunt malfunction occurs (headaches, vomiting, swelling, etc) and even then the child may be asymptomatic. However, this chronic condition may affect the student’s ability to learn and mature intellectually, socially and emotionally. Most children with hydrocephalus have normal or above-average intelligence and are eager and willing to learn and succeed. It is not uncommon, however, for them to have learning disabilities that have the potential to hinder their overall development if not recognized and remediated in a timely manner. There is no standard profile of “the child with hydrocephalus” – just as there is no standard profile of “the typical child.” However, by understanding more about hydrocephalus and its physical, cognitive, and behavioral effects, you can ameliorate areas of weakness and vulnerability to positively affect a students learning style and social and emotional growth. Collectively, we can improve the lives of all children diagnosed with hydrocephalus, beginning with their education. Please contact the Hydrocephalus Association for our teacher’s guide to hydrocephalus and other resources at www.hydroassoc.org or info@hydroassoc.org.

Bonnie Hom
Youth and Community Coordinator
Hydrocephalus Association
870 Market Street, Suite 705
San Francisco, CA 94102
Ph: (415) 732-7040
Fax: (415) 732-7044
www.HydroAssoc.org